Wow you sound like a tough case.
By the way, welcome to our forum.
I could not even comment except to say that if you want to be evaluated regarding CFIDS, you'd need to see a real expert. What part of the country do you live in?
My CFIDS specialist is Dr. Charles Lapp in Charlotte, NC. I know that when he was practiciing in Raleigh some years back before he specialized in CFIDS, many of his patients that were getting ill were members of the same symphony orchestra. I don't know the details except that I believe some went on to develop cancer. It was that set of circumstances that led him to specialize in CFIDS as I understand it.
#3 question on doc in their area
My heart goes out to you. Your body is attacked by all kinds of viruses and bacteria and toxins and it has no defense. Your immune system is supposed to recognize the pathogens and destroy them but is not capable of finding them and fighting them.
There are natural health supplements that provide the raw material to the immune system to become strong and healthy again. I myself have taken glyconutrients for several years and know that without them I too would have been diagnosed with a disease or two like you. If you would like to know more about the products I take, please write to me, my e-mail address is firstname.lastname@example.org.
Take care, Jana
Hi Jana - Are these products that you sell yourself, or can these be purchased in a local drug store or health food store?
you're right.. it's pretty confusing though. I have an "overfunctioning" immune system with the hashimotos and the antibodies to the other viruses.. but it's under-functioning with regards to the infections and cancer. I had one doctor say that my immune system is ignoring cancer cells because it is "busy" with other things, I don't understand it, but I do know that I need to find some answers soon because things keep getting worse.
|I understand. Having an immune system which is ignoring cancer cells is not good. sci10|
|Hi. I saw your message
about your immune system. I don't know if I can help, but here is a list
of things that I suffer from....in order from earliest (child), to
1. Chronic asthma and bronchial infections (pneumonia 4 x before 13)
4. migraines increased...harldy any life not painful
5. breast cancer - medually type - tamoxifin 3.5 yrs., radiation 3 mos.
6. fibromyalgia, Sjogren's syndrome, chronic fatigue, connective tissue disorder.
7. depression - very severe
8. sleep depravation - severe
9. Chronic Leukemia
The only item above that the doctors told me I was cured from was the breast cancer. But...then I got chronic leukemia 8 yrs. later. So, who knows. My immune system is bad. My teeth are going bad due to the Sjogren's system. It doesn't matter how much I brush, floss or see the dentist...they are falling out. My skin is so dry..it's always flaky, even when I use a moisturizer. The pain I am now suffering from is in my neck and shoulders. It is so bad that I cannot work. I don't do housework either. Mostly, I lay in bed all day, on a heating pad.
I am going to a pain clinic now...it helps with the pain a bit, but I am still hurting. I take lorazapam to sleep, and used to take it all the time, at first, to stay calm. I hope I helped you somehow by listing all of my ailments. I hope you're better. Kate
Maybe we can have a study? helps for baby?
Have gulf war vet studies found info we need? *