Myelofibrosis - Nose Bleeds  

Could anyone offer any help for nose bleeds in a person that was diagnosed with myelofibrosis about 15 years ago and has been enjoying pretty good health using natural herbs, no prescription meds, but is experiencing severe nose bleeds. 

 
Any information would be greatly appreciated. - Clara

8-30-04
i am new to this site so i hope i am posting this correctly, my father was diagnosed with mylofibrosis 2 years ago. he was taking a medication called hydroxia however it quit working as far as keeping his hemoglobin up, he then was using the procrit shots which also did no good. last year his spleen was removed weighing 6 1/2 pounds. since last year he has been taking only vitamins and coral calcium supreme, unfortunately this week his hemoglobin has dropped to 6.2 and he is also having nose bleeds and cramps in his legs. he is scheduled for a transfusion this Friday, although he does not want to have one we are told it is the only thing left to to try. which is why im writing in this site now. i would like to hear from the lady who wrote in here about a loved one who is treating with herbs for the last 15 years. so if you read this i sure hope you will reply. thanks   

Tonya 9-17-04
Nosebleeds?
 
& the father with spleen removed and dropping hemoglobin
 
Have you all checked for whether or not there is undiagnosed acquired autoimmune hemolytic anemia?  It does this and it causes the 'gulf war syndrome' the CFS and the CFIDS from what I can tell
 
It's harm is unrecognised & I suspect it is THE FATIGUE doctors are looking for
 
I believe the most help will be found in checking what is wrong with the bone marrow as red blood cells and all the immune cells are made in the bone marrow.  (If other organs with stem cells make the red blood cells, there is risk for paralysis)
 
I often hear of swollen and ulcerated organs like gall bladder, spleen, pancreas.  I think there is harm to the pituitary and all the endocrine system.
 
The chemical is 2-butoxyethanol.  So if you are being exposed to that still; stop exposure immediately.
 
Again, if  you can stop any exposure to this chemical AND get help for the autoimmune issues, there would like the most help.  Some recent discoveries

1-27-05

I have only studied 2-butoxyethanol and talked to people with known and suspected harm from it.  I have no medical background; however, I do have an understanding of what 2-butoxyethanol family of chemicals can do

What would it look like if someone had this AND autoimmune hemolytic anemia at the same time?  It is possible, isn't it?

 

Myelofibrosis Syndrome Information
MDS, or myelodysplastic syndrome, is a collection of disorders in which the bone marrow does not produce enough blood cells.

Normally, the bone marrow produces three major types of blood: red blood cells (which carry oxygen to the blood), white blood cells (which help the body fight infections), and platelets (which help blood clot).

MDS is not considered a cancer. However, some forms of MDS can progress to acute myeloid leukemia (AML), a type of cancer.

Comment:  Benzene is known to cause aplastic anemia; 2-butoxyethanol is known to cause hemoltyic anemia (red blood cells only)... though autoimmune lots of things seem to be part of 2-butoxyethanol harm